As life expectancy rises, families
increasingly face the challenge of caring for sick or elderly
relatives. The diagnosis may be dementia in an aging parent,
or multiple sclerosis or cancer in a formerly robust spouse or
sibling, but the question remains the same -- How do I
find the strength to rise to the occasion and meet this
challenge?
NO EASY ANSWERS
Caregivers face a multiplicity of
complex issues, in which family beliefs, cultural values and
spirituality all come into play. For example,
- Which family member is the designated
caregiver when a parent is ill?
- Is the responsibility to be shared?
- How long can you or should you care
for a loved one at home?
- When is it time to consider
institutional or hospice care?
- Is death to be embraced as a
spiritual release, or is it something you don't discuss in
your family?
- How do you juggle raising young
children while caring for older parents?
There are no easy answers to questions
like these, and over time each family comes around to its own
way of thinking and coping. But whatever path you choose,
there is no doubt that caring for a seriously ill family
member means riding an emotional roller coaster, with
sensations veering from anger to denial to fear to guilt to
hopelessness to grief. According to a study in the American
Journal of Geriatric Psychiatry, under all this pressure,
one in three caregivers ends up developing symptoms of
depression.
To learn how to summon the strength to
care for an ill loved one, I spoke with Sandra W. Haymon, PhD,
author of My Turn: Caring for Aging Parents & Other
Elderly Loved Ones: A Daughter's Perspective (Magnolia
Productions).
HOW TO STAY STRONG
Dr. Haymon suggested a number of things
to do, including...
- Develop a support network.
Involve other family members and friends in caring for
your loved one. Chances are they're anxious to help but
don't know how. Your best bet is to assign specific tasks
-- for example, doing yardwork, feeding the pets,
assistance with doctor visits or vacuuming the house.
Don't be too proud to accept help from any and all who
offer. They really want to help and you don't have to do
it all alone.
- Prioritize. Dr.
Haymon has seen too many caregivers try to do everything
they did previously, on top of their new responsibilities.
She suggests making a list of what's important and,
keeping in mind that time and energy are finite, forgiving
yourself for not being able to do it all.
- Think outside the box.
Dr. Haymon recommends that instead of saying that things
"should" be done a certain way, open the door to
thinking they "could" be done in an altogether
different manner. For instance, the yard
"should" be tended to, but it "could"
be done by someone else. Or, it "could" remain
less than perfectly groomed, and that's okay too.
- Set aside time for yourself.
Make it a point to get out and do other things, even if
it's just once or twice a week. For example, join a friend
for dinner or a walk. Nature can be especially comforting,
so catch up with one another as you stroll through the
park or along the beach. Don't feel like you are deserting
the person in need by taking time for yourself. When my
children were very young, my pediatrician would regularly
ask first and foremost how I was and if I was taking time
for me before he would even start to talk about the
children. His theory: If Mom was not happy and
taking care of herself, she doesn't have energy and
emotion to care for others in a loving way. The same holds
true when caring for the sick and elderly.
- Join a support group for
caregivers. Here you can freely share your
emotions with others who have faced or are facing similar
challenges. Dr. Haymon adds that this is a great
opportunity to pick up practical tips that will save you
time and energy, learning from those who have already been
there-done that. If you're uncomfortable with groups,
consider one-on-one counseling.
- Explore your spirituality.
If religion has played a big part in your or your loved
one's life, now is the time to embrace it all the more.
Attend religious services, arrange for clergy to visit,
pray together and sing familiar hymns. On a practical
level, church or temple members can play a valuable role
in your support network.
- Keep an eye on your own
health. In focusing on the needs of someone who
is very ill, it's easy to forget to take care of yourself,
warns Dr. Haymon. To stay strong, eat well, exercise and
get enough sleep. Also, don't neglect regular check-ups.
- Don't use alcohol or
cigarettes as crutches. Drinking and smoking are
not uncommon responses to caregiver stress. Be aware of
this, and instead choose positive coping mechanisms. For
example, set aside 15 minutes each morning to practice
yoga, tai chi, meditation or deep breathing.
- Consider respite care.
Advocacy groups such as the Multiple Sclerosis Society (www.nationalmssociety.org)
and the Alzheimer's Association (www.alz.org)
offer this service, in which trained individuals take care
of the afflicted person while you take a breather. Other
resources to tap into include local YMCAs, hospitals and
civic organizations.
GIVE YOURSELF A
BREAK
As many positive steps as you take to
stay strong during this challenging period, there will be
inevitable moments when you feel angry or upset or frustrated
or disappointed, notes Dr. Haymon. You may even feel anger
toward your loved one, and experience guilt about that. She
advises that, above all, you allow yourself to freely
experience these feelings.
Don't try to suppress what are
completely natural reactions and emotions. Let the tears flow,
or pour out your feelings in a journal... then move on,
gathering comfort and strength from the fact that you're far
from alone in your struggle, and there are concrete steps you
can take to meet the challenge.
Be well,
Carole Jackson
Bottom Line's Daily Health News
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